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The Fear of Seizures…And Why Words Matter

Two years back, ten days after the birth of my younger kid, my husband had his first seizure. All of us were sleeping when it happened. It was around dawn, and I feel embarrassed to say that I had no idea what was happening when I saw him. I called 911 and they told me that it was a seizure.

Since then, he has had two more seizures – one every year – and they still scare me every single time. The weeks following a seizure are filled with stress, panic, anxiety, maybe even a little indignation. I have sleepless nights, thinking I may not wake up to watch over him if he has another one in his sleep. If someone as much as sneezes or drops a pillow at night, I get up startled.

However, every time, after months of this behaviour, I realize that the moment we let fear into our lives, it takes over everything in it. It consumes us to the point that everything starts to scare us, and our mind, rather our life, ends up becoming a big What If? What if it happens when he is walking on the road, or taking a bath, or driving? What if it intensifies in the coming years? What if this, what if that…until you cease to live in the present.

Now, you would know, that especially if you have kids (and especially if they are both quite young), you cannot afford to do that. You cannot let fear of anything consume you or those around you. You have to stay strong, especially if those around you derive their strength from you. Of course, you have to be cautious, do everything in your power to stay safe, but you cannot go around living life under the heavy blanket of fear.

I have to admit that having a strong support system makes it a bit easier, even if we can’t see them due to pandemic restrictions, these days (I will spare you the discussion of the fear of Covid-19, at this point). However, I will also go on to say that at such times, I realize how important words are, too, as people aren’t always sensitive to the vulnerability following a life-altering experience, such as this.

The first time my husband had a seizure, firefighters came along with paramedics, in case he needed to be carried to the ambulance. One of the firefighters was quite young. I had recently given birth and needed privacy. So my mother-in-law (who was kind enough to come and take care of us and help us out after the delivery), my husband, and my older kid slept in the same room, while the newborn and I slept together. When I was explaining the situation to the 911 team that arrived, the said firefighter chuckled and commented, “Oh, so your husband was sleeping with his mother-in-law?” I corrected him and said, my husband and my son were sleeping next to my husband’s mother, and then answered the paramedics’ questions, but his comment continued to pinch me days after the episode.

I really respect the teams that rescued us both at the time of my second delivery (yes, we had to call 911 when my younger one was born, too) and at the time of my husband’s seizure. They were prompt, considerate, professional, compassionate and fulfilled their duty perfectly. They helped us at times when we felt completely helpless, and I cannot express the gratitude I feel for that alone. However, the comment made by that one person, who probably wasn’t even thinking before speaking up, upset me a great deal for the exact same reason – why do people not think before they speak anymore? Why are we always asking people to NOT THINK AFTER HEARING what someone has said? Why can’t we remind people to THINK BEFORE SPEAKING instead?

If you’re reading this, I would like you to remember that words matter, especially if you’re talking to a highly sensitive person, especially if you’re talking to someone who has gone through a challenging experience. Let’s be kind to each other, whenever possible. It is always possible.

©️Pebble in the Ocean 2021

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©️ Pebble in the Ocean 2021